Resources For Families

Disclaimer:
The information is provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.

Medical Guidelines and Reviews

The International 22q11.2 Foundation, Inc.

Clinics

Comprehensive 22q Centers

22q Clinics Around the World

Other Societies

Family Support Organizations

Family Activities

22q at the Zoo (Annual event)

The 15^th Annual 22q at the Zoo – Worldwide Awareness Day will take place on May 22, 2025. More information will be available in 2025.

Raising Awareness

Luces por el 22q - Lighting the 22q

The “Luces por el 22q/Lighting the 22q” is an international awareness movement that began in Spain in 2018. We submit requests to government or private organizations to have the most significant buildings illuminated in red on the night of November 22^nd. We choose November 22^nd (“22/11”) as a play on the name, 22q11.2 deletion syndrome.

Here are the countries that participated in 2021.

USA

Philadelphia locations:

Children’s Hospital of Philadelphia Roberts Center for Pediatric Research
Boat House Row
PECO Center City Highrise – Crown Lights
The Franklin Institute

The Franklin Institute

Learn more About the 22q11.2 Society

Discover the 22q11.2 Society by exploring our Advisors, Trustees, Knowledge, and Research Initiatives pages. Gain insight into our organization’s foundation, objectives, research, and efforts.