Resources For Families

Disclaimer:
The information is provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.

Family Activities

22q at the Zoo (Annual event)

The 15th Annual 22q at the Zoo – Worldwide Awareness Day will take place on May 18, 2025. Visit 22q.org to learn more.

Raising Awareness

Luces por el 22q - Lighting the 22q

The “Luces por el 22q/Lighting the 22q” is an international awareness movement that began in Spain in 2018. Members of the 22q11.2 community submit requests to government or private organizations to have buildings illuminated in red on the night of November 22nd. We choose November 22nd (“22/11”) as a play on the name, 22q11.2 deletion syndrome.

The Franklin Institute

The Franklin Institute, Philadelphia, Pennsylvania, USA

Learn more About the 22q11.2 Society

Discover the 22q11.2 Society by exploring our Advisors, Trustees, Knowledge, and Research Initiatives pages. Gain insight into our organization’s foundation, objectives, research, and efforts.