Request for research participation

Request for research participation from families whose child (ages 9 year to 12 years) has a 22q11.2 deletion syndrome: Talking to your child(ren) about their diagnosis

A Genetic Counseling Master's student has developed an interactive educational module to help parents overcome potential challenges in speaking with their child (aged 9 to 12) about the diagnosis of 22q11.2 deletion syndrome. She is looking for parent volunteers who are willing to try this module and provide feedback. It involves about 30 minutes of the participants' time to view the module with their child(ren) and complete a survey before and afterwards. Should you have any families who might be interested in participating, could you please share this opportunity with them. The student study coordinator can be reached at: simina.bogatan(at) The study will be open until March 1st, 2019.

Please note: This post does not constitute a scientific or an ethical endorsement by The 22q11.2 Society for the above-mentioned research study.