The 22q11.2 Society

Promoting research, diagnosis, prognosis, and management of 22q11.2DS & related disorders

Family Corner

This section contains information for families of patients with 22q11.2DS.

The information is provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.

Medical Guidelines and Reviews



Family Activities

22q at the Zoo (Annual event) - May 20th, 2018

Light for 22q (Luces por el 22q) - May 22nd, 2018
With the motto of "Raise Awareness, Make 22q Visible", families and professionals joined the initiative to light up emblematic buildings or monuments in Spain. Please visit to see the photos.

11th Biennial International 22q11.2 Conference (Family Meeting) - July 14th to 16th, 2018
Please see also Photos from the previous conference at Sirmione in 2016.


The 22q11.2 Society Registered Charity No. 1165896